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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hi
Been having a lot of problems since switching. feeling unwell, sleepy and blood pressure plummets and I cant stand up late PM and then my blood results- salts dropping, crp 91 etc.
I have ended up taking extra dose of Hydrocortisone to get me through the afternoons. I am on 20mg in morning and 10mg in the afternoon which is supposed to be switching like with like although the strength changes to compensate so 10mg or prednisolone is 30mg of Hydrocortisone.
Anyway- left a message for the endocrine team to ring me and today they rang to say the suspect I have Primary Addisons disease.
this is different to steroid induced secondary addisons as it means several other chemicals are compromised. Fearing that I might end up in hospital again it was worth ringing and leaving a message wasnt it?!
she is going to write to GP and Rheumatology to let them know and for me to start having this new drug as soon as possible. then I can go back to taking the proper dose of hydrocortisone (20mg and then 10 in the afternoon instead of the 20mg and 20mg I am taking at the moment).
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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oh jenni good idea to have rang left message,sending u warm hug t care hope pray they arrange change for u asap lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Hi Jenni
I hope you get your new drug quickly, and it works really well for you. I hope Bernice is feeling better too.
Love Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Jenni,
Hope you can get the new drug soon and start to feel better.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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More wonderful news then? I'm sorry, love. 
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 235
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Jenni, hope they can get you sorted asap!!
DEb x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hope you've had some news Jenni.
Julie x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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How are things today, Jenni?
xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Jenni, hope the drug works really fast for you. So good you contacted them and didnt leave it. Hope the family are doing ok x x  BARBARA
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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no appointments available and the letter hasnt gone to the GP
Left another message.
place your bets for the next CRP result.
We could even play play your cards right- HIGHER? ...... LOWER?how to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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I can't belive I'm reading this. No appointments? Letter hasn't gone to the GP? What the b***y hell is going on here?
Hugs, love and prayers, as always
xxxxxxx
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Thinking of you Jenni as ever.
Eleanor x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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oh dear
letter from the GP this morning run 3 of the bloods are so grim they need to see me- make an appointment now!
yeekshow to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Oh Jenni - more probs. Will ring you on Monday
Much love
xxxxxx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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ohh jenni big hugs form me such alot stress no appoinment rubbish lapses in care grr so disgusted by way your pushed to fight for everything. praying for bloods calm down hun t care lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Shame on them! You must complain or get hubby to!
I SO hope and pray you are seen QUICKLY!
Much love and prayers,
Amanda
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Sorry this is not good again Jenni - hope you get into see GP on Monday.
Julie
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Jenni So very sorry to hear of all the problems you are having. You are one brave lady in the face of such adversity. Hope the children and Richard are okay (well as much as they can be with a poorly Jenni). You are in my thoughts. Lyn x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Did you manage to see the GP about your blood test results Jenni?
Julie
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